Mom story: My kids have life-threatening food allergies Mom story: My kids have life-threatening food allergies

  Mom story: My kids have life-threatening food allergies  Mom story: My kids have life-threatening food allergies

 Nov 29, 2012 8:00 AM by Julie Weingarden Dubin

How I Advocate For Their Safety

Jackie Ourman, 37, of Irvington, New York, is raising three boys — two with life-threatening food allergies — all while studying the culinary arts and managing her own celiac disease. Read why she won’t let her kids give up on eating delicious foods, despite their dietary restrictions.

“My mom story„

by Jackie Ourman
as told to Julie Weingarden Dubin
When my first child, Jake, was born in 2004, he was dubbed a “micro-preemie” weighing only 1-1/2 pounds. The fact that he lived was a miracle. The doctors told us we had to get through the first two years — a cold could be deadly due to his weak immune system. I left my human resources job at an investment bank in New York City to care for Jake.
My little guy grew and got stronger but four days before his second birthday, we had friends over for a Super Bowl party and Jake had a severe allergic food reaction. His face was swollen and red beyond recognition, he had hives all over his body and he was wheezing. We learned that Jake was severely allergic to peanuts, several tree nuts and sesame.
In 2006, we had another son, Jeremy, and at about 1 year he showed signs of asthma. Testing found that Jeremy had the same life-threatening food allergies as Jake, in addition to egg and many environmental allergies. In 2010, we had our third son, Jarrett, and thankfully, he does not have any food allergies or intolerances.

Food or foe?

Today my boys are ages 3, 6 and 8. In addition to food allergies, Jeremy, 6, and I were recently diagnosed with celiac disease. We need to avoid gluten (wheat, barley, rye and most oats). I felt sad for Jeremy — no pizza, sandwiches, pasta or birthday cake. But I think it’s been easier for him since I was also diagnosed. We are in it together and I can empathize with him in a way that I think makes him feel he’s not alone.
I’ve always loved to cook and read about food. But my relationship with food became challenged when my love for food turned to fear. I couldn’t get past the idea that food could kill my kids.
Fear and isolation became a big part of my life because almost all of the social events in our society revolve around food. But I realized that I can’t isolate my kids or protect them 24/7. I could only do my best to try to figure out how to manage their food allergies. I became a member of the Food Allergy & Anaphylaxis Network, which advocates for research funds and educates people on life-threatening food allergies.

A culinary education

I initially felt like I was throwing a pity party — focusing on all the foods that Jeremy and I couldn’t eat, but then I decided I was going to turn the situation around. I went on a quest to learn as much as I could about food and recipes for my family and also to raise awareness about food allergies and celiac disease in order to help others. I challenged myself to get more creative in the kitchen.
I’d focus on the delicious foods we could eat and I’d tweak recipes to introduce even more favorites to our menu. My palate’s been influenced by various cultures. My parents are from Egypt. My mother-in-law is from the Dominican Republic and I spent three summers living in Mexico. I love creating savory recipes. I want my kids to love food despite their dietary restrictions.

With my husband Jason’s support, I enrolled in the Institute of Culinary Education (ICE) in New York City. I completed Culinary Management School last August, and now I’m in the Culinary Arts program. I want to help restaurants become more allergy-friendly and work with families with similar issues so they can transition to flavorful diets.
I feel so excited and passionate about the ability to potentially guide others. I started a blog, Celiac and Allergy Friendly Epicurean, in order to journal my experience and share recipes and resources dealing with food allergies and celiac disease.